Following a period of remission, receiving a diagnosis of relapse can be difficult. Some people may feel like this is a second emotional blow and may experience a range of emotions during this time.

There is always support available—and like with your initial diagnosis, it is important to move forward together with your family, friends and healthcare team. Read more about finding routines following diagnosis here.
 

I’ve received an AML relapse diagnosis: 

• Below are some tips for people living with AML relapse from our oncology nurse partners:
  • Always ensure that you have asked all your questions before you leave the hospital, and make sure you know exactly what your next steps are, whether these are more tests, further treatment or palliative care. If you would prefer to have all the information from your consultation in writing, you can ask for a summary letter. If you feel overwhelmed or have further questions following your meeting with your healthcare team, contact your clinical nurse specialist who will be happy to further discuss any questions you or your family may have.
  • Remember to speak to your healthcare team about the additional support services available, such as counselling and any support groups specific for those who are experiencing relapse.
  • Talking about your thoughts and feelings, whether with your family, your doctor or external counselling services, can help bring things into perspective and help you cope better with your situation.
  • Practising mindfulness and breathing exercises can help relieve any stress, allowing you to come to terms with diagnosis and address your emotions.
  • You may lift the way you feel by engaging in activities that you were enjoying before your relapse and initial diagnosis, as much as you can, to connect back with your daily routine.

My loved one has received an AML relapse diagnosis:

• Below are some tips for family and loved ones from our oncology nurse partners:
  • It is important to note that almost every support service available for your loved one, is also available for you. Ensure you take the time to speak with your loved one’s healthcare team to understand what is available within your hospital, region and online. Your loved one’s doctor can refer you to a mental health professional, if necessary.
  • When you can, try to be present to help your loved one come to terms with their diagnosis and, if they need you to, accompany them to the hospital/appointments.
  • Encourage them to talk about what they are going through but respect their decision if they do not feel like sharing.
  • Try to find shared goals to have with your loved one, such as joining them in daily exercises or other activities.
  • It is important that you take care of yourself—take time to relax, engage in a hobby or visit your friends.